Now showing 1 - 2 of 2
  • Publication
    Supporting participation: Facilitating inclusion of rural Australians aging with intellectual disabilities in research using validated survey tools
    (Wiley-Blackwell Publishing Ltd, 2016) ; ; ;
    Aim: To determine the feasibility and costs of supporting rural people aging with intellectual disabilities (ID) to complete validated survey tools. Method: Community-based organisations in rural New South Wales identified eligible survey participants, defined as people aged over 59 living in the community either with or without life-long ID. Tools included SF12, Duke Social Support Index (DSSI) and Cummins' Personal Wellbeing Index. Online and paper-based surveys were completed by the mainstream cohort. A pilot indicated participation by people with ID was only feasible through 1:1 interviews due to language complexity in some tools. Results: Researchers surveyed 70 people with ID from 12 geographically diverse towns, with 164 age-peer surveys independently completed. Costs of survey administration were calculated for each mode. Excluding researcher salaries, the average cost of collecting the rural ID cohort was $101.33 and $11.96 for age-peer paper surveys. Conclusions: Supporting the inclusion of rural people aging with ID in research using validated survey tools is both feasible and desirable. Recommendations include that projects consider the cost and methodological impacts of each mode during design.
  • Publication
    Perspectives about support challenges facing health workers assisting older adults with and without intellectual disability in rural versus urban settings in Australia
    Aims: Life expectancy for both sexes in Australia exceeds 80 years, with individuals with intellectual disability also increasingly living into older age. This research aimed to comparatively examine perceptions of staff supporting either older adults or age peers with lifelong intellectual disability. Methods: This project asked 420 medical, health, and support workers about training adequacy, health services access, and trigger points for premature institutionalisation. This paper is based on a subsample of 196 respondents who provided quantitative and qualitative responses. Results: There was considerable variation in confidence in supporting ageing individuals, while only 23.7% of doctors reported their training was adequate to support adults ageing with intellectual disability. A lack of services and poor carer health were identified as triggers for premature institutionalisation. Conclusions: The study revealed key differences in staff perceptions of support provision and training adequacy when comparing ageing individuals with intellectual disability to the general ageing population.